Decoding Darier's

The Challenge

Decoding Darier's, a nonprofit dedicated to Darier's disease awareness, had built a community on Instagram—but had no website to call home. Without a digital hub, they lacked the infrastructure to grow their email list, collect donations, or provide resources to the people who needed them most. With a fundraising walk in Chicago on the horizon, they needed more than just a website—they needed a platform that could support their mission long-term. Our goal was to create a foundation for sustainable growth: one that would capture supporters, encourage donations, and serve as a resource center for their community.

Our Strategy

We invested two weeks upfront in deep discovery, mapping out the entire user experience before writing a single line of code. We asked the hard questions: Why would someone visit this site? What would compel them to donate? What resources does this community need that don't currently exist? How will this scale as the organization grows? From there, we built the essentials first—a clean, mission-focused website and a dedicated landing page for the Chicago walk. The long-term roadmap includes disease awareness content, community resources, and a blogging strategy to drive organic traffic and establish Decoding Darier's as a trusted voice in the space.

The Results

The October walk was a success, supported by a landing page that helped rally the community and drive participation. Since launch, the website has become a true digital home for Decoding Darier's—traffic is flowing, email subscribers are growing, and the organization now has the infrastructure to scale. What started as a bare-bones MVP is now the foundation for long-term impact: a platform built to educate, connect, and inspire action for years to come.